Monday, September 24, 2012

Ocean's Run 13.1 Results!

I know it's been a while since the last post; busy is the word lately. The kids are back in school and my jobs are keeping me straight out right now. But, we had been running at least once a week to keep pace and ready for our half marathon. For each of the past two weeks we ran at least once, 10 miles was our maximum.

So, yesterday's half marathon was fun! It was challenging, but fun. We finished in 2:12 - slower than I had wanted, but we finished pretty strong nonetheless. 

photo.JPG The three of us, just seconds before the race started.

It was a beautiful morning; cool and sunny. Cady and I ran with my friend Dave Cartwright, who actually pushed Cady at least half the time. Dave has been running a lot longer than me, so having him as a partner was great. Thanks Dave. Thanks, too, to Kathy Robbins. Kathy is the race director/owner of TRIMOM races, the organization that put the Ocean's Run together (http://www.trimomprod.com/). Thanks to her, we were able to run right in the pack with everyone else - it was much more fun than starting ahead of the other runners.

Cady seemed to enjoy almost the entire run. Around mile 10 she started cry. We figured she might be cold, so we pulled off to the side and bundled her up in a beach towel I brought. After that she was fine. There were a few inconsiderate jerks: one girl at mile 9 told us rather coldly that we shouldn't be running with 'that stroller', as if she had some kind of say in the matter. Apparently, she thought we were trying to qualify for some kind of USATF event. Whatever. Not long after that, a guy driving a Jeep absolutely refused to yield to all of us that were running together -  he actually moved closer to us instead of steering his vehicle into the left lane. He even put his hands up in the air, as if we weren't supposed to be on 'his' road. We all thought he was a ... you know what. Besides that, everything else was fine.

photo.JPG I was so happy that Kelly came with the kids to see us! This is Kiefer watching us approach the finish line.

We have one last race I'd like to run in this season - the Newport Amica/United Health half marathon. I think Dave will be running again with us. I hope John will be able to, also (he pulled his calf a couple days prior to Sunday). Again, we'd love some company. If you'd like to run with us, just let me or Kelly know.

Thanks for reading.

Corey

Friday, August 31, 2012

With Sympathy

This post isn't about running; it's about one of Cady's friends.

Last year the school organized an informal pizza dinner for the parents in Cady's class - all of the children in her primary class have some kind of disability. Most of the children are far worse off than Cady is. I barely kept it together as I listened to each parent/couple talk about the challenges their child faced. Several of the kids have seizures and other repetitive problems that prevent them from sleeping through the night which makes taking care of them a ton of work. I felt so bad for them all. I kept thinking that, up to that point, I was feeling kind of sorry for our situation. But that discussion really awakened me to the reality that some parents face. At a minimum, one of the children had a degenerative disease that made their diagnosis terminal.

I'm sad to say that one of Cady's classmates died. I don't know how old she was and I'll refrain from stating her name out of respect for her family; I think she was around 7, maybe eight. I remember this about her: the first time I met her she held both of her arms horizontal as if to say, 'what's up?'. One of the teachers told me that was her way of asking for a hug. I was so touched - she seemed like such a nice little girl who was dealt a real shitty hand in life. I so admired her parents for having helped her find a way to communicate her thoughts and feelings.

I know Cady liked her. I have many times asked Cady if she was looking forward to school, to seeing her friend. Cady almost always smiles. Tonight, I told Cady that she won't be seeing her little friend anymore. I told her she got too sick. I don't think Cady understood me - I'm going to ask Deb to try to explain it to her again tomorrow.

I didn't want this posting to be a downer, but let's face it: life is full of challenges and difficulties. When we hear about how difficult others have it - loosing a very young child to a disease, or loosing an adult child to a senseless act of violence - we should take pause for a moment. It's a reality check. How bad can things really be for us? I admit: Cady is a lot of work. But, that's it - she's just more work than the average kid; it's not like she's dying.

So, for anyone struggling with life's challenges: keep your head up, work hard, and stay positive. There is absolutely no question about it: someone else always has it worse. Looking at things from that perspective might make all of us think twice before we compain about something.


Just for the record, we did run the other day - I took the kids with me again and they made it about 0.6 miles at a ridiculously slow pace. They feel good about it, though, and Cady seems to like it. We did just over three miles again; our three mile run is now pretty routine for us and we could almost do it in our sleep (not really). Cady doesn't choke or gag anymore and I'm much better with the hills. With last week's 10-mile run going great, we'll be fine for our upcoming half marathon.

One more thing: I flipping love this video on youtube about perseverancehttp://www.youtube.com/watch?v=kZlXWp6vFdE
If this doesn't make you cry then you're a vampire or something. If you want to cry more, read the text below the video from the woman who created it.

Monday, August 20, 2012

Back in the Saddle!




A couple things to preamble this post:

1. There are few things like musical inspiration: http://www.youtube.com/watch?v=uIPS4LyveJs . Click the link if you're looking for a little Aerosmith inspiration to kick some butt exercising.

2. I finally made good on my debt to Chris for the 20 burpees. I did all 20 this morning, with 20 pushups as interest owed. I don't like exercising first thing in the morning, but it felt good.


So, we finally got back out there this afternoon; it felt great! Nice temperature and humidity. We did four miles in about 38 minutes. I was reminded today that our upcoming half marathons aren't going to just happen; I'm not a kid anymore (and haven't been for some time). When I was a kid, I was a fast sprinter. I was the second fastest kid in high school. Don't get me wrong: I was no Ussain Bolt, but I also was't Danny in Grease.




If Cady and I are going to make a respectable showing at these races, I'm going to need to do some hill and sprint training. I need to work on maxing out my heartrate and then running through the recovery for the next minute or so. That's the kind of endurance I need to build up to again. I did a half marathon last fall; so I know my body can do it. I just need to get a few long runs in ahead of time.

It's looking like the Ocean's Run Half Marathon (9/23) and the Amica/UnitedHealth Half Marathon (10/14) are the two we'll be doing. Both race directors have been extremely accomodating and easy to communicate with. We'll probably be running with Dave Cartwright and John Sisson, but again, we'd love company if you're interested. The CVS 5k is on 9/16 - Kelly and I will be running that together; it will be her first official race. I might let her beat me!

For today, Cady did great - no choking, no coughing, no gagging, and best of all - no spitting up. We listened to 80s music for a little while and then I switched it to a Wiggles Pandora station for her; she really liked that. A Billy Ocean song was a blast from the past - I think I was in high school when his music was popular. Once again, I told Cady to meet me at the door if she wanted to go for a run. By the time I had quickly gotten changed, whe was already hanging out the back door ready to go! I just don't think it's a coincedence -  I really believe she understands what I'm saying and that she wants to go out together.

One last thing for tonight: most of you probably didn't know this, but Cady has NEVER had a hair cut. At first, Kelly wanted it to grow long enough so that she could put it in a ponytail. And then we just never got it cut. We always just pull it back and put it in a ponytail. The problem has been that her hair, at this point down to her waist, becomes so difficult to brush, and she hates having her hair brushed. We each have our methods for brushing her hair - Kelly just muscles through it, I hold her horizontally and just brush it down towards the floor, and Deb puts her in her chair and bribes her with cartoons! So today, Kelly's friend and hairdresser came to the house to cut Cady's hair - she looks so good, and so much older - she's such a pretty little girl.


I should be posting a little more regularly; the Ocean's run is only a month away. As always, thanks for reading.



Tuesday, August 14, 2012

Give Kids the World

So I want to take a few minutes to give you some details from our recent trip. We stayed at a place called, Give Kids the World. It's a not-for-profit organization just outside of Orlando, FL. It runs a beautiful "storybook resort" for families with children that have life-threatening illnesses and/or disabilities. It is funded mostly by corporate partners and private donations. Here is the link to its website: www.givekidstheworld.org. The place is staffed with hundreds of volunteers - from older retired couples to church group teenagers. Their mission is noble and honest.

The trip was all part of a wish granted to Cady. Her wish (we actually chose it based on what we thought she would most enjoy) was to see the Wiggles live in concert. The RI Wish Come True organization generously offered to make it a travel wish since the Wiggles had an upcoming performance at the Orlando Hard Rock Live. It was a great trip and we are very greatful to everyone who made it possible. We were able to go to Disney's Magic Kingdom, Seaworld and Universal Studios!
Callia anxiously awaiting the Magic Kingdom's 9 pm parade.

Blue - one of the many characters the kids got to meet at the resort.

The Wiggles cast members were great! We had 'Meet and Greet' tickets for before the show. Everyone was very personable and friendly, and they seemed to take a genuine interest in Cady. During the concert itself, Greg (the yellow one) came into the audience for a bit they did; he recognized Cady and stopped to say hello to her again. Honestly, I think Kelly and I were more excited for Cady than she was about the experience herself, but we both agreed that she had a good time. It was after the concert that we met a family with a young boy with CP (I mentioned them in a previous post). I promised to email them so that we could stay in touch - I have to make good on that promise after I finish writing this.

Cady, as she notices whose behind her.

The Smiths and the Wiggles!

I know tonight's commentary wasn't about running. I just wanted to let you all get to know us a little better and share some fun experiences we recently had. We will be running again soon - tomorrow, in fact. There are several races coming up that we've been given the 'okay' to participate in. I listed them on the facebook page. WE WOULD LOVE TO HAVE A LARGE GROUP RUN WITH US AT ONE OF THE UPCOMING HALF MARATHONS. Just get in touch with me (facebook, phone, or email) if you're interested.

Thanks for reading.

Sunday, August 12, 2012

AWESOME!!

What an AWESOME experience today was! I got choked up several times as we ran past huge crowds that gave us really loud and continuous cheers. Cady loved it! There were a few groups of girls in pink or yellow shirts that gave us the loudest cheers. Some people had cow bells and whistles. You would have thought they were cheering for Justin Beber. The crowds on the street were really important, especially towards the end of the race. That last mile was tough: there were two consecutive hills and I was really winded at the crest of the second one. But I kept hearing people tell us, "Good job!", "Keep going!", "Almost there!", and giving us thumbs up and applause.

The day started with rain and humidity; we were pretty wet before we even started. Poor Steven stepped in a couple puddles and thus had soaking wet socks for the entire race. Chris and I just laughed at him. A few minutes before we began, the rain stopped. We met Brian, a man who raced in a hand-crank wheelchair with a couple escorts; they've done a lot of races, including the Boston Marathon. I'm going to try to stay in touch with him - he said he'd love to run a race with us. And then, just before we were set to begin, Dick and Rick Hoyte approached the start line. I only got to say hello to Rick; Dick was crowded by people saying hello. Runners have a pretty close circle of friends that they must see at lots of races. I told Rick how inspired we were by his efforts and wished him and dad luck.

I was grateful to have our two escorts (Chris and Steven), especially for the first mile or so. There were still a lot of pedestrians and cars on the roads and it was good to have them keep an eye out for the traffic. It also made for a more enjoyable run; we talked about our trip to Disney and other things to pass the time. Somewhere between miles 3 and 4 we saw Chris' family and stopped for a minute to say hello. Then, just before mile 6 we saw Kelly, the kids and Jess (Steven's girl friend). I got high-fives from Callia and Kiefer before continuing on.



Overall, it was a really positive experience. I'm glad we did it and I'm glad we were able to raise some money for a worthy organization. I'm already looking for the next race and for anyone who wants to run with us. Just comment on this blog or on our facebook page if you have any ideas or are interested in running with us.


Team 'Running for Strength' before and after the race.


Pretty close to the lobster roll Steven and Chris shared after the race.
After the race, we drove to Dennis to spend the afternoon with my aunt Jane and a few of my cousins at the beach. Cady hopped around in the wet sand and carrying her was like having someone rub sandpaper all over my chest! I'm still sore. She and the kids had fun, though, and it was nice to see some of my family that we don't see too often. After seeing the lobster roll from earlier in the day, I had to have one myself; so we ordered a few from a restaurant down the street.

That's it for tonight. Kiefer has camp starting tomorrow and I have to get him to go to sleep. Hey, I need some rest myself.

Saturday, August 11, 2012

Twas the night before ... race day!

It's finally here - our first big race! I think Cady is genuinely excited about it; I've been talking to her about it all day and she smiles each time. This is the first time our family has been to some kind of non-medical 'event' for her. We've been to Callia's dance recitals, Girl Scout ceremonies, Kiefer's t-ball games, etc. But, nothing for Cady that I can recall (other than cake and ice cream for her birthdays). She really has never had the opportunity to participate is stuff like that. So, this is a big deal and I want to make sure the whole family is into it and understands the significance of her participation in a sport.

It's been over a week since either of us has run - I wanted to go yesterday afternoon, but the flash flooding and tornado watch squelched that idea. I was hoping for just a couple mile tune-up, but it never happened. No matter; we're ready. The forecast isn't looking so great - hazy and humid. At least it's early in the day so it won't be too hot. We're going to the beach afterwards. My dad's family has a cottage on the beach in Dennis; we'll spend the afternoon there.


A couple days ago, unexpectedly, we got two Easter Seals jerseys to wear. They only sent two, so Chris and Steve will be wearing whatever they feel like wearing. The jerseys are red with white lettering. Cady and I will both be wearing the jerseys and black shorts. Our colors are somewhat significant: as you all must know by now, Cady's nurse and family friend, Debbie, lost her 23-year old son a week and a half ago. He was heartlessly murdered by two minors. We were in Florida for the calling hours and funeral, but I attended the burial yesterday afternoon - it was very sad. Anyway, Michael was buried in a black urn with red roses laid over his grave; red and black were apparently his colors of choice for clothing and Debbie thought it appropriate to bury him that way. Well, by coincidence (or not if you believe in that sort of thing) our Easter Seals shirts are red and I have only black running shorts. So, our colors end up being in memory of Debbie's only son.




I want to thank Debbie DeBello and her friend Jamie for picking up our race bibs yesterday. They saved me the aggravation of having to drive to Falmouth. I also want to thank Chris and Steven in advance, for their support and willingness to run with us. And, of course, Kelly, since I KNOW she doesn't want to get up at 5:30 tomorrow morning and get four kids ready and out the door.  As for the fundraising, we're officially at $1,350, but I still have to put in the paperwork for my company's match, about another $1,000. So, we collectively crushed the $1,000 that need to be raised. I actually spoke with someone today whose father has received services from the Seals; I'm happy to have raised money for them and hope their mission will be furthered that much more.

I have so many other things I want to write about and will try to get to them all during the upcoming week. I want to tell you all about our trip to Florida - meeting the Wiggles cast, the Disney experience and a place called 'Give Kids the World' (www.givekidstheworld.org). While there, we met some really nice people, including a couple families with a disabled child. Oh! And I've begun reading Dick Hoyt's book, 'Devoted' (www.teamhoyt.com) - I need to tell you about that, too.

For now, though, I'm going to make sure Kelly has everything packed (as if I have a say in what/how things get packed!) and then try to get to bed a little early. Look for my blog tomorrow or Monday with race day narratives and pictures!
 
 






Wednesday, August 1, 2012

Up, Up and Away!

It's finally here - a surprise trip to Disney and a Wiggles concert! It's all part of A Wish Come True wish granted to Cady. The kids have no idea that we're going; we're going to spring on them in the morning right before we leave. Callia is going to be sooooo excited for her first airplane ride!

I think Cady will love the trip - especially being able to meet the Wiggles characters before the show and then being able to enjoy the concert right in front.

As for running, we did our 3 miles this afternoon in just over 29 minutes. When I got home, I asked her if she wanted to go for a run. She looked right at me and said, "yeaaah". I don't think she liked the music we listened to, though. She started to fuss after about 2.5 miles. But, she didn't gag or start to choke the entire run  - that's really good for her. I told her that she's getting better at our runs, too.

Kiefer's birthday is today and a bunch of his friends came over for a little party. Pizza, cake and ice cream.  They all swam and played. Kiefer had fun, except when he didn't. Are all boys his age that moody? All it takes is one of his friends to burp and he's happy again - it's ridiculous ... really. I met the mother of one of Kiefer's friends who also has a disabled child. I think she said he was 10 or 11. She said she likes to run but hasn't yet run with her son. I told her we should get together and run periodically. She's the kind of person I'm looking to get in touch with through this blog and facebook page.

Well, I might post something once while we're gone if I can sneak in a run. Otherwise, our first race is 4 days after we return and I'll be blogging right up to and after it. Stay tuned!

Tuesday, July 31, 2012

Busy Week!

I know, I know. We haven't run yet this week. I didn't feel well yesterday; I had a 6:00 appointment tonight; and guess what? Tomorrow is Kiefer's birthday and we're having cake and ice cream. The next day? We're leaving for Disney!! So, it's tomorrow, then. I'll try to get home a little early and take Cady for a quick 3-mile run before everyone gets here. Plus, I still have those 20 burpees to do or Chris will never let me live it down.

So, tomorrow it is, then! Check back tomorrow night.


On a very sad note, Cady's long-time nurse, Deb, lost her son last night. He was killed at only age 23. We all feel so badly for Deb - she really is part of our family and we wish we could do something to make her feel better. Life is short enough as it is.

Friday, July 27, 2012

Fire & Rain


Prelude:

I read Chris’ blog today (http://theplaygroundchallenge.blogspot.com/ ) – which is extremely entertaining and funny - and am glad to here that Sully is fine after getting hit by a car. I had actually intended to do a couple of burpees in honor of Geoff, but I forgot and now I’m having a vodka gimlet so that’s not going to happen – I’ll do 20 tomorrow; I promise.
First off, let me say that during my short period of semi-serious running (about 2 years) my nipples have never hurt. I’ve listened to some of my friends complain that the constant rubbing of their shirt chapped their nipples to the point of bleeding, but I never experienced it. Well, today that ended. My nipples are killing me! Could it have something to do with the torrential downpours that Cady and I ran in? By the time we came back we were both soaked.

I tried to time it so that we went out between the cloud bursts that danced around us this afternoon and although we didn’t meet up with any thunder or lightening, we couldn’t avoid the rain. Cady actually liked it; she kicked and squealed quite a bit today. It was bizarre weather –at one point, while it was raining we could see bright sunshine not too far off. No rainbow or Leprechaun, though. Most of the people who drove past us waived and smiled (like the penguins of Madagascar) and we had a couple Groundhog Day moments. But, it was fun and I’m glad we went out.


So the run itself: I have repeatedly found that when I don’t feel energized or pumped up for a run, I settle in and have a really good run. Conversely, when I’m all into it and ready to go mentally, I sometimes struggle. Today, I wasn’t really feeling it, but I told Cady last night that we’d go out today. Within the first half mile we were in a groove. We actually could have gone much further today had it not been so close to dinner time (I was the cook tonight). So our time and distance was good for a rainy day and I like the number of calories the phone tells me I burned. By the way, the Sound Shell held up better than my nipples did. We ran to an 80’s rock station on Pandora.

Someone hold me to those 20 burpees tomorrow ... Chris.

Monday, July 23, 2012

Running with Music is Better - Way Better.


Today was our first run with our new Sound Shell. It’s a portable speaker for any kind of device with a headphone jack. It’s a hard shell, the phone/device goes inside and zips closed. There are Velcro straps (it’s advertised as a bicycle speaker), so you can mount it to anything. It’s water-resistant and shock-proof; the sound is REALLY GOOD – we ran to Pandora’s Guns N’ Roses station! It was only $35 on Amazon!

My goal was for us to run 3 miles at better than a 9-minute mile. We came really close! 2.9 miles at 9:12 average pace. That’s our best pace yet by over 20 seconds. That proves that your mind is stronger than your body because I had to psyche myself into a pretty fast finish even though my legs felt like Jell-O.
Whenever we hit a hill and my heart rate soars, I tell Cady that she needs to make some noise to inspire me to push harder. I was thinking that sports teams ask the same thing from their home crowd to enthuse the players. My absolute favorite thing about going to watch the Celtics at the Garden is the music and crowd noise at the beginning and then whenever the team needs a lift. When Kiefer and I went last, he and I lost our voices for a couple days because we screamed so much! The players always say that it really does motivate them. You know what? When Cady kicks her legs and makes her unique ‘squeal’ (for lack of a better word), I get goose bumps and a little adrenaline boost! I feel like its her way of telling me she’s having fun and I run faster.

So the race – the Falmouth Road Race (www.falmouthroadrace.com ): it is 19 days away and you can bet that we’ll be ready. However, I found out that we need to have at least one, but preferably a few, escorts to run with us. It’s a safety thing – they like an escort in front and behind the AD running team (Ambulatory Disabled Entrant) just in case a wave of runners approaches. That way, the escorts can act as a buffer so no one trips over the wheel chair, etc. My brothers-in-law, Chris and Steven (Steve is Kelly’s brother and he’s in pretty good shape as a member of the R.I. Army National Guard and Chris got this whole thing going). We’d welcome another runner or two if anyone is interested. It’s free, but I need to know within a couple of days because you’d need to sign a consent form. Two is enough, but a couple more would make it that much more fun.
Most of you probably saw the facebook page that we started today. Hopefully that will make it easier for you to follow us. I also saw that we’re up to $700 for the Easter Seals and many people have called or emailed me to informally tell me they plan on donating, too. The money for the Seals is really a secondary goal. Don’t get me wrong – their mission is very noble and I believe in it. But Cady and I are running more for her mental and emotional well-being. It’s giving her a way to participate in a sport that she otherwise wouldn’t be able to do. It gets her out of the house for some scenery and fresh air. It's a bonding experience, too, just like when any parent plays a game or sport with their child. That being said, we’ll probably fund raise again – maybe for A Wish Come True or for Hasbro Children’s Hospital.

I think that’s enough for tonight. Tomorrow night I’m taking the kids to see ‘Brave’, but we’ll run again on Wednesday. I'll also tell you about the birthday party we had last week for the kids and the donations we collected for Hasbro.

Sunday, July 22, 2012

Tomorrow ... I love you, tomorrow ...

Well, today just didn't work out ... for running. We had company and we ate a lot. We had a couple drinks, too. We played cards and the kids played. It was fun. Cady was a little out of sorts - she was awake much of last night and was tired and crabby all day. No matter, she still socialized and is now sound asleep.

I went on to facebook and saw something posted by Team Hoyt I have yet to read. However, I did see his sign off: "Yes you can!". I love that man. I read that and immediately told Kelly that Cady and I will be running as soon as I get home tomorrow. I think we'll work on our speed; goal: at least 3 miles at less than a 9 minute mile.

I'll post tomorrow night and I'll tell you how our new Sound Shell works.

Friday, July 20, 2012

Happy Birthday, Cady!

Five years ago,almost to the minute (10:14 I think), Cady was born. The experience wasn't like our previous two (or like Kenley's six months ago). We knew there were going to be some complications; Kelly's water had meconium mixed in (the baby's stool) and we expected some breathing issues to follow. However, meconium aspiration is not an uncommon complication, so we weren't too worried. As it turned out, the six week roller coaster ride in the NICU afterwards resulted in a gut wrenching realization: our baby was not going to grow up like the others.

Of course, we were devastated and immediately went into denial. We kept thinking her brain would find a way to repair itself or circumvent the damaged area. But, ... that didn't happen. Instead, we now have Cady as she is and love her nonetheless. Really. One time, Kelly and I were talking about our children and I told her that Cady was my favorite. She looked shocked because I'm actually closer to our two older children (Callia and Kiefer) and I love them so much. But, there's a very soft place in my heart for Cady that will never get crowded by anyone else. I'm not a soft, caring person (on the outside), but I really feel for those in need, especially children, especially Cady.

So, no running today. Just a little party consisting of close family, pizza, cake and ice cream. We're planning a family run on Sunday at the middle school track. That should be fun for everyone.

Cady smiling as we sang 'Happy Birthday' to her. Soon after, she smeared chocolate all over her face and into her eyes - I had to give her a shower!


Thursday, July 19, 2012

Fore!!


Today was our best run yet: out of our neighborhood, down Old Forge Road, into Goddard State Park and back - 5.3 miles. We averaged just over a 10 minute mile. So, we’re getting there; 9 minutes is my goal. Look below at the screen from my Run Keeper app. These are our runs, except for the 6 miler I did by myself last week. Today’s run wasn’t that far off from that.

Today was Cady’s best day, too. She was very vocal and into the run. I think she liked seeing the cars drive by and the people playing in the park. We nearly got hit by a bright yellow stray golf ball! It’s a nice Callaway Practice - I took it home as a souvenir. At one point Cady seemed to be chocking a little (she often does because her gag reflex is poor). I said to her, “Breath Cady, breath”. She looked backwards up at me and said, “I ahhh bbrreee”! I apologized and better explained what I meant.


A couple notes on the running:
#1) Cady and I both need to be comfortable in order for this to work out; she kept sliding forward and I had to keep adjusting her back to an upright position. She's not a baby, but an active 5-year old girl. I’ll tinker with the straps to see what I can do about that.

 #2) The stroller needs a tune up. It kept pulling to the right like a car out of alignment. I’m not sure what got a better workout – my legs or my arms!
#3) Internet streaming music websites like Pandora or Slacker don’t work very well when you run into a dead zone (pun intended). I need to download a bunch of music on iTunes. I’ll just take whatever Kelly and my kids already have.

On another note, I spoke to or received emails from quite a few people today; people who offered us encouragement to keep running and to keep writing. Some of you were generous with your money, too, and donated to the Easter Seals – thank you for that support. Again, if you like the blog, please ‘Follow by Email’ or become a member of the site. Also, please tell others about the blog. I am going to set up a facebook page soon which should make it easier to follow us.
Someone remind me to tell you about Jessie Cooper next time.
I thought it was a giant nut falling out of a tree until I realized we were right next to a small driving range!

Wednesday, July 18, 2012

It's official!


It’s official! We’re registered for the 2012 Falmouth Road Race! It’s a 7-mile run on Sunday, August 12 at 10 a.m.

Since general registration was closed when I tried to apply, we had to get our bib number through one of the participating charities. I chose the Easter Seals because they help people with disabilities like Cady, and pledged to raise $1,000. So, we need a little help – we’re looking for some of you to help ‘sponsor’ our run by donating to the Easter Seals. They’ve set up a convenient web page to facilitate the fundraising:  http://www.easterseals.com/goto/RunningForStrength1027

Donations will be received directly by the Easter Seals when you click on the “Make a Donation” button and are tax deductible. I plan on having my employer match the aggregate amount donated by my co-workers and me. If you feel compelled, please make a donation to this noble organization.

As for Cady and me, we’ll be training for our run and looking for anyone who wants to join us at any of our upcoming races.

Monday, July 16, 2012

Introduction


Many of you know Cady, my five year old daughter. Cady was born with cerebral palsy (CP) because her umbilical cord was tied in a knot and deprived her brain oxygen. She spent her first six weeks of life in the hospital and has periodic return visits for miscellaneous health complications. Ask anyone though – especially her teachers and her nurse, Deb, and they’ll tell you she has spunk and intelligence. As another child once put it, ‘she’s trapped inside a body that won’t work’.

On her second birthday, we took Cady to Duke University for an umbilical cord blood reinfusion – a pilot program. The hope was that the stem cells from her own banked cord blood could migrate towards damaged areas of her brain and perhaps regenerate or repair the area. Thanks once again to everyone who helped make that trip possible – we had to raise a considerable amount of money. Although she has made quite a bit of progress since then, Cady continues to have to eat via feeding tube, still cannot speak, and cannot yet stand or walk unassisted. We still hope for the best for her.

Thanks to my brother-in-law, Chris, I recently read about a father who has been helping his disabled son participate in sports for over 30 years – Dick Hoyt (see the link here to Team Hoyt: http://www.teamhoyt.com/). This is a guy, now in his seventies, who has run well over 1,000 races and triathlons with his son Rick: when running, he pushes Rick in a race wheelchair; when swimming, Rick lays in a raft and Dick pulls him; and when cycling, Rick sits on a specially-made seat at the front of their race bike. Seriously?! Who commits to doing that? Dick Hoyt, that's who. Rick says that when he’s out there with his dad he feels like his disabilities disappear. There are others I'm finding out there who are doing similar activities.

Well, I have been so incredibly inspired by the Hoyt's tenacity and determination that I’ve set out to at least run with Cady. She's only about forty pounds and the jogging stroller is pretty easy to push (except up the hills!). I don’t aspire to be like Mr. Hoyt per se, but I have already started to experience the rewards of having Cady participate in a sport with me. I don’t yet know exactly how she feels about it, but she smiles and kicks her legs when we’re out there and I think that means she likes it. I ask her each time we go out and I think she tries to tell me 'yeah'.

I’ve started this blog to track our running progress. We’ll be running a couple times per week and I’m starting  to find races that I can register us for. I’ll post pictures and will write here regularly. I'll ask my wife, and English major and writer, not to critique my writing too harshly. I encourage any of you runners and/or supporters out there to chime in whenever something strikes you. If if you like this blog, tell others about it. Our first official race is the 2012 Falmouth Road Race. We had to get our race number through the Easter Seals and consequently will be trying to raise some money for that charity. I'll post something about that later.

I also intend this blog to be a place where others with similar circumstances can go for encouragement and support. Having a disabled family member is hard work. Mr. Hoyt’s motto is “Yes you can!” I like that. Although I view myself as being very self-motivated, we can all use some encouragement and I hope that Cady and I can encourage others to do whatever they can to give their physically challenged loved ones as normal a life possible. More than anyone else, I hope my other children grow up with positive, 'can do' attitudes. So much in life, like a race, is simply mind over matter. We can all accomplish great things and overcome seemingly insurmountable challenges if we just commit to it.

So, stay tuned. And if you happen to know my brother-in-law and good friend, Chris, thank him for getting this going and tell him to get his running shoes on and his butt out the door!
Facing you is Cady - laughing as she tries to touch her new baby sister.